Oh my God, the fatigue.
I would like to think, after two and a half years of trigeminal neuralgia, that I would know what to expect. I think I’m an expert at getting it the fuck done, chronic face pain and all.
I’m aware that being in constant pain is very draining and I’m used to being exhausted all the time, but this is a wave of fatigue like never before.
I’ve always tried to avoid the word fatigue as I don’t have chronic fatigue syndrome (otherwise known as M.E), I have chronic fatigue – just chronic fatigue on its own – chronic tiredness, chronic exhaustion and just plain old chronic drowsiness. I don’t want mine to ever be confused with M.E. I just have TN and my body can’t keep up.
Over the last few weeks, I have been breathless sat on the sofa. Even going to the bathroom feels like an epic journey across the house. No amount of naps or eating fruit is going to cure it (believe me, I’d do anything to get rid of it!), I just have permanent ‘nope, not a chance’ radiating from my entire body.
Apparently, fatigue can be a common side affect of most illnesses, but the overwhelming information coming from my research about chronic fatigue and neuralgia is that the medication makes you tired, being in pain makes you tired and no one generally wants to crack on with anything whilst being in constant excruciating pain anyway. I don’t really have a lot to go off.
I’ve been in remission from my neuralgia before, once, for almost a year, but fatigue seems to hit me on and off with no real pattern that I can notice.
Another reason I have never really used the word fatigue before is that it feels like giving up if it’s more than just being tired, or lazy, or not feeling quite ‘myself’. I have finally given in to the name this month. I’m coming home from work and just sleeping, I’m unable to make plans, I can barely wake up, I’m so tired that I can’t even fall asleep! I am well and truly defeated by the tiredness.
Any tips to help fight the fatigue? ♡