Trigeminal Neuralgia

Trigeminal Neuralgia and Fatigue 

Oh my God, the fatigue.

I would like to think, after two and a half years of trigeminal neuralgia, that I would know what to expect. I think I’m an expert at getting it the fuck done, chronic face pain and all. 

I’m aware that being in constant pain is very draining and I’m used to being exhausted all the time, but this is a wave of fatigue like never before.

I’ve always tried to avoid the word fatigue as I don’t have chronic fatigue syndrome  (otherwise known as M.E), I have chronic fatigue – just chronic fatigue on its own – chronic tiredness, chronic exhaustion and just plain old chronic drowsiness. I don’t want mine to ever be confused with M.E. I just have TN and my body can’t keep up.

Over the last few weeks, I have been breathless sat on the sofa. Even going to the bathroom feels like an epic journey across the house. No amount of naps or eating fruit is going to cure it (believe me, I’d do anything to get rid of it!), I just have permanent ‘nope, not a chance’ radiating from my entire body.

Apparently, fatigue can be a common side affect of most illnesses, but the overwhelming information coming from my research about chronic fatigue and neuralgia is that the medication makes you tired, being in pain makes you tired and no one generally wants to crack on with anything whilst being in constant excruciating pain anyway. I don’t really have a lot to go off.

I’ve been in remission from my neuralgia before, once, for almost a year, but fatigue seems to hit me on and off with no real pattern that I can notice.

Another reason I have never really used the word fatigue before is that it feels like giving up if it’s more than just being tired, or lazy, or not feeling quite ‘myself’. I have finally given in to the name this month.  I’m coming home from work and just sleeping, I’m unable to make plans, I can barely wake up, I’m so tired that I can’t even fall asleep! I am well and truly defeated by the tiredness.

Any tips to help fight the fatigue? ♡

7 thoughts on “Trigeminal Neuralgia and Fatigue 

  1. If I were you I would take a trip to the doctors just in case. I have Trigeminal Neuralgia and I am always tired. Some of it is down to medication and also that kind of pain does wear you down. About a year ago I noticed being out of breath after going upstairs to put some laundry away. After several days of feeling really shit I went to the doctors and had blood tests. I was very anaemia and this was put down to the medication I was on. It took two months to get back to being just plain tired rather than fatigued. I take rests whenever I can and when my eating is poor I have vitamins and energy drinks. I wish I had a magic wand for you my darling but I am here for cyber support whenever you need. You can add me on Facebook if you like. The link is on my WordPress page. Squashy hugs for you x


  2. Can you try avoiding cold air and wear a hat when outside? This does help me with my trigeminus problems. I become quickly very drowsy from cold air… It would be interesting to hear if that helps you too.

    Liked by 1 person

  3. I’m right there with you! That’s why I found your post! I’ve had a flare up of my face pain and I just feel crappy. I wondered if my fatigue and TN issue was related. I’m guessing it is. Believe it or not, I take no medication for this. So it’s not a side effect from meds. Have you had any relief?


  4. I have TN type 1 and 2. If there is such a thing as having both. To say I feel tired most of the time is an understatement. It’s a down to the bone relentless fatigue. Sometimes it puts my into an overwhelming sleep after I eat. Before I thought it was something I was eating, but now I am wondering if it’s the chewing itself doing it. When I wake up I feel overheated and aweful. I don’t wish this on anyone. Xxxx


  5. The cold air will trigger my pain as well throughout my left cheek and into my left ear. If I know I have to be out in the cold I take hand warmers so that I can keep my hands hot and put my hand against my cheek.


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