Trigeminal Neuralgia

Why I Write: Living My Third Year With Trigeminal Neuralgia

I recently saw a post on instagram that said “don’t use your social media to impress people, use it to impact people” and it summed up why I write. I first put pen to paper – or fingers to keyboard – in the hope that my words would just help just one person struggling with pain. It turns out I’ve managed to connect with quite a few people struggling with pain!

I would like to think I’m pretty clued up about living with chronic pain, now I’m a few months off my three year neuralgiaversary! I can’t believe it’s been so long. I know I don’t know it all, I know there are thousands of things left to learn about TN, nevermind the million things about different types of chronic pain, but I’m still here, three years from the first strike of the suicide disease and I think I’m doing pretty well.

All I want from my social media is to be a rock, a shoulder, a supporter, a friend, a bit of knowledge, a helping hand with a box of tissues, a face to shout at, for anyone who has to face a life of incurable illness on their own.

For some people, social media is a place to impress and where we can take a look at their fantastic lives. My social media is the place where you can see me at my worst, where I’m complaining about being in pain, whinging about medication, feeling absolutely rotten and letting the world know.

Reach out to me, drop me a message, let’s figure this out together! ♡

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