Trigeminal Neuralgia and My Period

I started my period on Saturday and I’m convinced that it set my facial pain off. This probably wasn’t the post you were expecting from my blog today and it wasn’t one I was expecting to write either. In fact, linking my menstrual cycle to my Trigeminal Neuralgia isn’t something I’ve ever considered before.. until this weekend.

I have been at a relatively low pain level for the last couple of weeks and the day my period started, I was in absolute agony.

I don’t usually get a headache with my period. In fact, I’ve actually enjoyed having a ‘normal person’ headache for the last couple of times I’ve experienced one with my cycle. I always get really bad stomach cramps, which can make me double over in pain. I get back ache occasionally, but I never get sore boobs. I’m aware of all the usual pain symptoms that are associated with getting your period and I always know what pain to expect.

This weekend, when my period started, my neuralgia decided to start playing up too. It was timed almost perfectly and, it’s only as my period has eased up and passed the heaviest days, that my facial pain has calmed a little too. Last month, I experienced the same thing, which I thought was just a coincidence at the time, but now I’m sure it’s something more. I started to look into this and I’ve come across a couple of things and had a few thoughts..

No one is really talking about this on the internet. I came across about two articles and a handful of forum posts, where other people are wondering if their period has anything to do with a neuralgia flare up.

The articles conclude that they actually don’t really know if periods can set neuralgia off. Which leaves me thinking I’ll have to conduct a study about this myself! I’ve seen a lot of ‘hormones might affect it’, but really, no one has a clue!

No one knows anything much about Trigeminal Neuralgia in general. It’s all guess work, even by the professionals!

I feel like we need to get this conversation started. I am convinced that my period has had something to do with my pain this weekend.

Please tell me about your experience with neuralgia and your period, even if it doesn’t cause a flare up for you! Please let me know your thoughts about this topic! ♡

Trigeminal Neuralgia

24 Comments Leave a comment

  1. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).

    Like

  2. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area (Nova Scotia, Canada) proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).
    Thanks for documenting your observations, thoughts, and feelings regarding this horrible affliction. I’m so sorry that someone as young as you is dealing with this monster. Stay strong.

    Like

  3. I haven’t noticed a connection between my period and the flare ups but maybe because every time it has flared up my attacks were horrible almost the whole time Period or not. This time though the TN has been way better because of certain health choices I’m making and it’s amazing! It’s almost gone and I’m not on any medications. I do believe that it can be cured despite all of the negative info online about it being incurable. And you’re absolutely right the medical world knows hardly anything about it. It truly breaks my heart.

    Liked by 1 person

  4. I just noticed that since I’ve been off of the Tegretol, I’ve gotten my period twice and both times I had a flare up on day 1. I’ve started writing everything down to do a little detective work myself.

    Liked by 1 person

  5. Yesterday I posted your link to a support group in which I belong…Since we are all different, I proposed the question as, “Any other ladies notice that your TN spikes during the time which is the toughest part of your cycle?” Over twenty ladies so far say they suffer as well. Thanks for posting.

    Liked by 1 person

  6. I have Endometriosis as well as TN. I never thought about them going hand in hand but I think you’re right cause my face definitely gets worse right before and during my period. I was just saying about how this past Sunday I was on the couch all day with a heating pad on my stomach, back and face. It was torture. Thanks for writing this article. I’m definitely more intrigued now.

    Liked by 1 person

  7. I have felt that it’s inflammation throughout the bidet especially during the period. Everything swells. Prosaic, prednisone, Tegretol, all of that helps bring down the overall inflammation. If someone could investigate the internal working of inflammation and how it affects people with TN or ATN, we may find and answer and preventative measure. IMHO. Thanks.

    Liked by 1 person

  8. The last few months my pain definitely spikes when I get my period and then gets better and then spikes again the couple of days after my period. I’ve been wondering the same thing!

    Liked by 1 person

  9. Hi there,
    I am newly diagnosed with TN myself, and was curious about this topic too. So far for me, it appears that during my sugar pill week/ actual menstruation week (when the estrogen is presumably lower because I’m off the real pill), my TN pain is less or gone. Weird! But it kind of makes sense for my specific case as my gynecologist always tells me that the extra estrogen from my pill has probably exacerbated my migraines for years. Interesting stuff!

    TN seems to have few consistencies across everyone who suffers, and I agree that this connection between female hormones and TN should definitely be studied more! So far I’ve only found a few peer reviewed research publications on the subject. Good luck!! 💚

    Liked by 1 person

  10. I’ve been tracking this for about 6 months now. Definite link between the two. At the moment I have little to no pain until about 5 days before my period and during the early heavy days then these fade. Thanks for raising this topic.

    Liked by 1 person

  11. Yes I get twinges through the month but its liveable. Few days before my period it starts then constant until a few days after. My periods have been quite constant recently so Ive had a lot of pain. I seen a hormone specialist who put me on low Hrt.. the estrogen made it the worst its been for the whole 3 months I was on it. Now started depo to stop my period

    Liked by 1 person

  12. Wow finally I know others experience this too! I’ve observed it for few months now. My TN pain starts on the first day of my period and it’s gone by the time my period is done . I used to only get pain when I was run down or immune system was down but now it seems it’s always when I’m on my period 🙏🏼

    Liked by 1 person

Leave a Reply to walkamyelinmyshoes Cancel reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: