Gemma, aged 35, runs the Instagram page Spondy Chrony Mummy. In July 2017, she was diagnosed with both Crohn’s Disease and type of arthritis called Ankylosing Spondylitis.
I am relatively new to this journey. I guess the theme of my instagram posts is that I wish things were better, but I am very grateful that things aren’t worse. I count my blessings every day, because when you do that you realise you are doing just fine. Having a chronic illness or two has slowed me down and frustrated the life out of me, but it has also helped my appreciation for the good things in life.
Our wonderful NHS have so far funded 3 biological treatments for me. I’m hoping and praying it is third time lucky, so far Infliximab is agreeing with my defunct body. I’ve had counselling, physiotherapy, dietitian input, numerous appointments, iron infusions. I trawl Instagram and forums for advice on supplements, exercise, lifestyle… and at the end of it all, I have realised that the best expert in all of this is ME. I know my own body. I am the best person to know what is working or not. I am my best advocate. I fight for me. I will get me through this.
Yes, I am one of those annoying people who try to be positive no matter how bad things get, because at the end of each day, I wouldn’t swap my life for anyone else’s. Every day may not be good, but there’s something good in every day. I might spend too much time on the toilet. I might hobble worse than my 88 year old granny. But even on my worst days, I love my life. My two amazing children, and my strong supportive husband, and my parents who never fail me – the love and joy I have in my life far outweighs the physical pain I feel daily.
Keep fighting warriors. Life is not a race or a competition. Tune out the trivial crap going on around you, it’s not important. Choose your battle and use those spoons wisely. You can do anything, but not everything. Focus on yourself and your own wellbeing because as they say, you can’t pour from an empty cup. You might not be able to get rid of your illness, but you can sure as hell do your best to make today a good day!
Check out Gemma on Instagram today! ♡