Writer. Mother. Living with trigeminal neuralgia, polycystic ovaries and a rare eye disease.
I am accused of being dishonest about needing help with medication and my finances, because I could communicate my medical history to the nurse on the phone.
I have lived with vision loss since early 2019 and I've learned a few things along the way.
Read more What I’ve Learned Living With A Visual Impairment Since 2019: The Vision Diaries
The phrase 'occupational health' seems to send people running and there's such a negative association with being 'managed out' of their employment.
Read more What To Expect When.. You Get Referred To Occupational Health
I thought I would cover a few questions I hear often about either asking for better treatment, or making complaints about medical treatment, when you are not happy with the service or care you have received.
Read more How To Make A Complaint At Your GP Surgery/Hospital UK
I think I've reached a point in my journey, of both my vision and my pain, where I've just had enough of not being disabled enough.
My vision loss is permanent. The photoreceptors in my eyes are damaged, like scarring, and I will never regain the vision back.
I have an eye disease without a name that falls under the White Dot Syndrome Spectrum (originally diagnosed as AZOOR in 2019, but changed to have no diagnosis in 2022) and my vision isn't 'normal'.
Read more How White Dot Syndrome Affects My Daily Life: The Vision Diaries
I am often asked what I can actually see, because I have a rare eye disease.
The Pain Corner 