In July 2015, I first heard the words ‘trigeminal neuralgia’ and a couple of hours later, I first saw the term ‘the suicide disease’ staring back at me on Google search. It made a very painful situation even more frightening.
When I started writing my blog, I hoped I would help to reach just one other person with Trigeminal Neuralgia and offer them a bit of comfort, but I'm actually saddened to see that my most popular post, which pulls in views from all over the world every day, is my post about the miracle cure piercing for headaches, the daith piercing, through a piece of middle cartilage on your ear.
This was the first holiday abroad I'd been on with Trigeminal Neuralgia (if we don't count that I experienced the first attack of TN in Rome two years ago), so I was very nervous about travelling with medication and with the constant fear of an attack if pain! I made lists, I stressed to my GP about flying with medication and what if something was wrong with the amount of drugs I need at security at the airport, what if my face hurt too badly on holiday to cope, what if I needed medical attention?
There have been certain benefits of the daith piercing discussed on the internet. Some people have claimed that getting this piercing has successfully cured their migraines, where modern medicine has failed.
As, most of the time, I'm noticing it on my left side, I do tend to shrug it off with a quick 'oh, it's on my bad side, it's on my TN's side, I'll be fine', because everything that happens on my left side just tends to be down to my TN!
The Trigeminal Neuralgia Anniversary Party: How To Turn Your Chronic Illness Into Something Less Scary
You only get one life and mine happens to come with constant face pain. What are you celebrating today?
Will people think I'm stupid? Am I slurring my words like I've had a drink? Do I come across as uneducated? Does this person think I wasn't listening to them?
I have had chronic face pain since 2015 and I feel like I'm at the stage where I can, mostly, continue with my daily life as normal. Here are my personal favourite tips for just getting on with it when you have TN..