Writer. Mother. Living with trigeminal neuralgia, polycystic ovaries and a rare eye disease.
I am often asked what I can actually see, because I have a rare eye disease called AZOOR - acute zonal occult outer retinopathy.
Read more What Can I See? Living With AZOOR: The Vision Diaries
It's challenging enough to bring a newborn baby home from the hospital, especially when it's your first child. Throw into the mix that my little girl was born prematurely, that we were supposed to move house the week she was born and, finally, that I live with trigeminal neuralgia - and what you get is the toughest few months of my life!
Sometimes on a high pain week, I don't want to do a lot of chewing, so it's very tempting to stick to soups and yoghurt, but that isn't very exciting.
So my advice for anyone who is pregnant with trigeminal neuralgia?
Since 2020, I have run the North West Support Group for the TNA UK.
Read more 4 Things I Have Learned From Running Online Support Groups For Chronic Pain
The Trigeminal Neuralgia Association is a UK registered charity that provides information and support for people living with trigeminal neuralgia and also for carers and medical professionals. We collate and share research material about the treatment and management of TN and financially support research projects.
Here are my top tips for getting the vaccine when you live with TN.
Read more Tips For Having Your COVID19 Vaccination When You Have Trigeminal Neuralgia
You would be correct in assuming that I have bigger things to worry about than being able to order a cocktail at a bar, but you'd be wrong to think that I'm going to give up the little things I enjoy every once in a while.
The Pain Corner 