Writer. Mother. Living with trigeminal neuralgia, polycystic ovaries and a rare eye disease.
The Trigeminal Neuralgia Association is a UK registered charity that provides information and support for people living with trigeminal neuralgia and also for carers and medical professionals. We collate and share research material about the treatment and management of TN and financially support research projects.
Being without a clear cause for pain or being without a diagnosis, does not mean that you are not in pain. It does not mean that you do not require medication to live with the pain.
Read more Why I Don’t Agree With the New NICE Guidelines For Chronic Pain
Here are my top tips for getting the vaccine when you live with TN.
Read more Tips For Having Your COVID19 Vaccination When You Have Trigeminal Neuralgia
You would be correct in assuming that I have bigger things to worry about than being able to order a cocktail at a bar, but you'd be wrong to think that I'm going to give up the little things I enjoy every once in a while.
On Sunday 17th January 2021, at 1.15am, I woke up to feel my waters had broken. I was 35 weeks pregnant, was supposed to have another week left in work and was completely unprepared to go into labour.
Come next year, when I go back for a consultation, I'll be asking for a new neurologist.
Read more I Don’t Have A Migraine: The Worst Neurology Consultation
"You can't take codeine when you're pregnant."
Read more Trigeminal Neuralgia and the Codeine Ban: I’m Pregnant
In June, I'd been feeling dizzy with stomach cramps and extreme fatigue. I pretty much always feel sick and tired, so this wasn't anything unusual, but the cramps without the period were getting getting pretty annoying after a few days.
