So my advice for anyone who is pregnant with trigeminal neuralgia?
Since 2020, I have run the North West Support Group for the TNA UK.
The Trigeminal Neuralgia Association is a UK registered charity that provides information and support for people living with trigeminal neuralgia and also for carers and medical professionals. We collate and share research material about the treatment and management of TN and financially support research projects.
Being without a clear cause for pain or being without a diagnosis, does not mean that you are not in pain. It does not mean that you do not require medication to live with the pain.
Here are my top tips for getting the vaccine when you live with TN.
You would be correct in assuming that I have bigger things to worry about than being able to order a cocktail at a bar, but you'd be wrong to think that I'm going to give up the little things I enjoy every once in a while.
On Sunday 17th January 2021, at 1.15am, I woke up to feel my waters had broken. I was 35 weeks pregnant, was supposed to have another week left in work and was completely unprepared to go into labour.
Come next year, when I go back for a consultation, I'll be asking for a new neurologist.