I was officially diagnosed with Trigeminal Neuralgia by a neurologist, but I already knew I had TN the day after I experienced my worst symptoms. My first point of call was my dentist, as my pain seemed to be coming from my mouth, and within an hour of me seeing him, he said he was very sure I had neuralgia and to make a GP appointment ASAP. When I told my GP what my dentist had said, she sent a referral through for a neurology appointment. Sometimes your dentist really does know best.
I have never been ashamed to admit that I've needed counselling before. To be honest, I'd think it was pretty strange if someone was diagnosed with incurable chronic pain and didn't feel depressed, or scared, or something along those lines.
I'm aware that everyone's circumstances are different and all scans will be different, but I've complied a small list of top tips to maybe give anyone a bit of help preparing for a brain MRI..
When my GP first suggested I attend my local pain clinic, I wasn't sure what to expect, so I went scouring the Internet and couldn't find much information there either. I hate the unknown, so I thought I'd write a little about my experiences, so if you're reading this and you don't know what to expect from visiting a pain clinic, hopefully a little information from me will comfort you.
I get the worst 'brain fog' in the world. Sometimes, my mind just won't co-operate with the rest of me! I get it both from the medication and from simply being in pain. I could possibly call it 'pain fog'!
I was just scrolling through Facebook this morning, when I came across a post advertising jobs for air staff for a particular airline and all the comments were about how it was so sexist and ridiculous that in this day and age, ladies are told they need to wear make up in certain jobs and it got me thinking about my own experiences with this.
I love to read! I spend a lot of my time snuggled up on my sofa with a book, or my kindle. I don't always have a lot of energy, so reading is an amazing escape for me. Sometimes, I'm in Waterstones and I find myself literally trying to sell a book to someone, recommending reads as if I work there!