When you live with 'the suicide disease', no one talks about how bad the medication makes you feel, because it doesn't compare to the pain.. But the medication for trigeminal neuralgia is awful.
My vision loss is permanent. The photoreceptors in my eyes are damaged, like scarring, and I will never regain the vision back.
Over the last two months, I've had three bad bouts of neuralgia flare ups. I've had days where I've been unable to eat. I've woken up crying with a shock. I had an episode that lasted twenty minutes last week.
When I was first diagnosed with TN, I was asked by my dentist if I was depressed. Apparently, pain disorders are more likely to flare up when you're anxious, stressed, or depressed. I can vouch for that.
Why am I always saying sorry for having additional medical needs? I even apologised to the HR department at my work for my disabilities.
Explaining TN to someone who doesn't live with it is near impossible, even a doctor, a pain specialist, or a neurologist. You can tell someone, 'this is the worst pain you could ever imagine' and the worst pain that person has been through is really bad toothache.
I know people who work on reduced hours, I know people who have taken career breaks, I know people on sick leave and I know people who have given up work altogether.
The first problem with being sent away with exercises to do on your own is that you can't tell if you're doing them correctly. The second problem is that no matter how motivated you feel to get better, it's really hard to find the motivation to do your exercises.