Sometimes, you need to take a look at the whole picture, the bad and the good. If I weigh up what TN has taken from me, I can see that it has given me just as much back in return. I wouldn't change my life, not even the most painful moments.
I used to really struggle to swallow pills. I remember my nan trying to get me to take a cod liver oil capsule when I was about 12 or 13; it simply would not go down. When I had a chest infection when I was 20, I had to take the child friendly liquid antibiotics instead of tablet antibiotics, because I said I couldn't manage to swallow a tablet. I had to take disolveable aspirin if I ever needed one, in orange cordial (and I don't like fizzy drinks, so those were awful!)
So, before I start the dreadful task of coming off my medication again, here are my top tips from the last time (that I absolutely must not forget) for anyone else who is deciding to brave the pain too..
I used to be a massive 'pill shamer'. I sneered at people taking painkillers for their headaches, or period pains. When I had any kind of pain, I used to live by the view that pain was there to tell us that something was wrong and, therefore, a good thing.
In July 2015, I first heard the words ‘trigeminal neuralgia’ and a couple of hours later, I first saw the term ‘the suicide disease’ staring back at me on Google search. It made a very painful situation even more frightening.
When I started writing my blog, I hoped I would help to reach just one other person with Trigeminal Neuralgia and offer them a bit of comfort, but I'm actually saddened to see that my most popular post, which pulls in views from all over the world every day, is my post about the miracle cure piercing for headaches, the daith piercing, through a piece of middle cartilage on your ear.
This was the first holiday abroad I'd been on with Trigeminal Neuralgia (if we don't count that I experienced the first attack of TN in Rome two years ago), so I was very nervous about travelling with medication and with the constant fear of an attack if pain! I made lists, I stressed to my GP about flying with medication and what if something was wrong with the amount of drugs I need at security at the airport, what if my face hurt too badly on holiday to cope, what if I needed medical attention?