I, on the other hand, get given a diagnosis for something incurable and say 'okay, that's annoying' and carry on with my day. My plate is absolutely massive.
Both my physical health and mental health took a turn for the worse over the last few months - I'm having more issues than I know where to begin with and I haven't been able to write for a while, which, in turn, affected my mental health too. In terms of physical health, I'm feeling probably the worst I've ever felt in my life and like my poor little body falling to pieces and there's nothing I can do about it.
I'm not disabled, I just do things a little differently, because I have to and that's okay!
Dysautonomia is a dysfunction of the autonomic nervous system which causes many symptoms, and which causes difficulties with controlling your heart rate, blood pressure, digestion, and more. This is usually life changing for many people, like me for an example.
Chronic illness, chronic pain, and mental health problems have been part of me now for the past six years, going on seven. I’ve received multiple diagnoses, and I’m not finished yet.
Over several months I had an MRI, CT, two occiptal nerve blocks, and physical therapy on my neck. It was discovered that I had a buldging disc and arthritis in my neck. One is fixable and one is not. After going over all my symptoms they diagnosed me also with occipital and trigeminal neuralgia.
Thought-out my life I have hidden my leg and made excuses, avoided questions, events and clothing etc in an exhausting attempt to portray that “I’m fine”.