I have a chronic pain condition called Trigeminal Neurgalia. Recently, I shared on Facebook that I've just had my three year neuralgiaversary and asked how long everyone else had been living with TN for. People commented who hadn't yet been diagnosed and people commented who had been living with TN for 20+ years. What struck me most is that, as far as I could see, everyone could remember exactly when they first were struck down with neuralgia.
I get the worst 'brain fog' in the world. Sometimes, my mind just won't co-operate with the rest of me! I get it both from the medication and from simply being in pain. I could possibly call it 'pain fog'!
I'm not here to claim my pain is worse than anyone else's, or that I know better. I hope your pain isn't worse than mine, I hope you're not struggling like I am, but I'm okay if you 'win' this one. I don't mind how mine pain compares to anyone else's. In fact, your pain is worse than mine.
Sometimes, you need to take a look at the whole picture, the bad and the good. If I weigh up what TN has taken from me, I can see that it has given me just as much back in return. I wouldn't change my life, not even the most painful moments.
For some people, social media is a place to impress and where we can take a look at their fantastic lives. My social media is the place where you can see me at my worst, where I'm complaining about being in pain, whinging about medication, feeling absolutely rotten and letting the world know.
On a Sunday evening, instead of taking my normal 40mg dose of the medication, I took 20mg. I took my normal dose of pregabalin and then waited to fall asleep.. and the sleep never came!
Today, I found myself in a lot of pain. Usual, unsurprising pain. Conked out on the sofa like usual, the babies climbed all over me, like usual: Cooper on my feet and Evie as close to my face as physically possible, every now and then 'talking' to me, to remind me she was right there, and then, once in a while, reaching out and touching my cheek on my TN side with her little paw, with all her claws out.