I have a chronic pain condition called Trigeminal Neurgalia. Recently, I shared on Facebook that I've just had my three year neuralgiaversary and asked how long everyone else had been living with TN for. People commented who hadn't yet been diagnosed and people commented who had been living with TN for 20+ years. What struck me most is that, as far as I could see, everyone could remember exactly when they first were struck down with neuralgia.
Will people think I'm stupid? Am I slurring my words like I've had a drink? Do I come across as uneducated? Does this person think I wasn't listening to them?
When I was diagnosed with chronic facial pain, I desperately searched around for hints and tips of how to cope with my new life, but I couldn't find anything, other than odd bits in different medical forums. I wish I'd had someone to tell me these things.. I've been there and muddled through it, so you don't have to..