I'm not disabled, I just do things a little differently, because I have to and that's okay!
Dysautonomia is a dysfunction of the autonomic nervous system which causes many symptoms, and which causes difficulties with controlling your heart rate, blood pressure, digestion, and more. This is usually life changing for many people, like me for an example.
I started my period on Sunday and I'm convinced that it set my facial pain off.
When my GP first suggested I attend my local pain clinic, I wasn't sure what to expect, so I went scouring the Internet and couldn't find much information there either. I hate the unknown, so I thought I'd write a little about my experiences, so if you're reading this and you don't know what to expect from visiting a pain clinic, hopefully a little information from me will comfort you.
My main problem with going to the dentist is that the biggest trigger for my TN is pretty much anything to do with my mouth, so that includes eating, touching my face, sometimes even speaking and - the second problem here - brushing my teeth. You might notice the vicious cycle here: I can't brush my teeth as well as I'd like and I don't want to visit the dentist in case that hurts as well.
Two years and a bit ago, I first heard the words ‘trigeminal neuralgia’ and a couple of hours later, I first saw the term ‘the suicide disease’ staring back at me on Google search. It made a very painful situation even more frightening.
Will people think I'm stupid? Am I slurring my words like I've had a drink? Do I come across as uneducated? Does this person think I wasn't listening to them?