I recently posted a picture on my instagram of a pile of Salivix boxes on my bed. Salivix are some sweets that help stimulate saliva and I think they're actually recommended for cancer patients. No one had heard of them, but plenty of people were struggling along with the dry mouth side effect of medication.
I was off sick with something other people had heard of and have probably, at some point in their lives, experienced as well. It was the most bizarre thing.
I used to be a massive 'pill shamer'. I sneered at people taking painkillers for their headaches, or period pains. When I had any kind of pain, I used to live by the view that pain was there to tell us that something was wrong and, therefore, a good thing.
I would like to think, after two and a half years of trigeminal neuralgia, that I would know what to expect. I think I'm an expert at getting it the fuck done, chronic face pain and all. I'm aware that being in constant pain is very draining and I'm used to being exhausted all the time, but this is a wave of fatigue like never before
Two years and a bit ago, I first heard the words ‘trigeminal neuralgia’ and a couple of hours later, I first saw the term ‘the suicide disease’ staring back at me on Google search. It made a very painful situation even more frightening.
When I started writing my blog, I hoped I would help to reach just one other person with Trigeminal Neuralgia and offer them a bit of comfort, but I'm actually saddened to see that my most popular post, which pulls in views from all over the world every day, is my post about the miracle cure piercing for headaches, the daith piercing, through a piece of middle cartilage on your ear.
Today, I found myself in a lot of pain. Usual, unsurprising pain. Conked out on the sofa like usual, the babies climbed all over me, like usual: Cooper on my feet and Evie as close to my face as physically possible, every now and then 'talking' to me, to remind me she was right there, and then, once in a while, reaching out and touching my cheek on my TN side with her little paw, with all her claws out.