About The Author

My name is Kirsten (Kiz) Cooper and in 2015, I was diagnosed with trigeminal neuralgia, a chronic pain condition that makes my face hurt all the time. In 2019, I was diagnosed with acute zonal occult outer retinopathy (AZOOR) after losing my central vision in my right eye. Initially, my doctor was worried I’d had a mini stroke, so advised me to stop taking my birth control pill and my periods seemed to stop. In 2020, I was diagnosed with polycystic ovary syndrome, which had been hidden by years of taking birth control.

I started The Pain Corner, because when I first typed the words ‘trigeminal neuralgia’ into Google, I was overwhelmed with the amount of websites referencing ‘the suicide disease’ and couldn’t find a positive post amongst the hundreds of pages I scrolled past. I created this website in 2017 to give other people hope that neuralgia isn’t a death sentence as the media would like to lead us to believe and because no one has the time or energy to trawl through medical journals either. This website is written by a real person actually living with TN.

Tell me something about you ♡

About The Author

2 Comments Leave a comment

  1. Hi. I am in Australia and part of a Facebook Forum called Trigeminal Neuralgia-Australia/New Zealand. I tripped over your blog while checking out answers for a question someone had about daith piercings. I see you have noted you are on pregabalin now and wondered if you have tried Tegretol in the past. I am on a combination of Pregabalin and Tegretol which seems to work very well together. I have also had Gamma Knife (didn’t work for me) and Glycerol Rhyzotomy – which has currently lasted for 7 mths. I am pain free and reducing my medications slowly. I know the Tn will come back but apparently the operation is repeatable so I have hopes for a bit more time yet. Trying to dodge the bullet of an MVD. Hope you have having as pain free a day as you possibly can. Best wishes for your future.
    Sally L

    Liked by 1 person

  2. My name is Jackie and I have TN. I have officially been diagnosed with it for about 11 years now. Sometimes I feel hopeless in my pain and other times I feel like I can live like a normal human being. This disease is something that is so hard to explain to someone that doesn’t have it. I end up learning to hide my pain and push through it just because I don’t want to have to explain it to yet another person. Anyway, I really commented because I read your blog about increased pain relating to my menstrual cycle. FINALLY I feel like I’m not crazy and someone else has experienced what I experience. Thank you for that. Praying that you have pain free days and are able to talk, eat, brush your teeth and do all the things that everyone else does without even thinking about it.

    Liked by 1 person

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