My name is Kiz and in 2015, I was diagnosed with trigeminal neuralgia, a chronic pain condition that makes my face hurt all the time. In 2019, I was diagnosed with acute zonal occult outer retinopathy (AZOOR) after losing my central vision in my right eye. Initially, my doctor was worried I’d had a mini stroke, so advised me to stop taking my birth control pill and my periods seemed to stop. This diagnosis was taken back in February 2022 and I was told that I have an eye disease that falls under the white dot syndrome spectrum, but I currently do not have a name for the eye disease I have.
In 2020, I was also diagnosed with polycystic ovary syndrome, which had been hidden by years of taking birth control.
I live in Bolton, near Manchester, UK, and I currently run the North West Support Group for the Trigeminal Neuralgia Association UK, for which I am also on the executive board.
I started The Pain Corner, because when I first typed the words ‘trigeminal neuralgia’ into Google, I was overwhelmed with the amount of websites referencing ‘the suicide disease’ and couldn’t find a positive post amongst the hundreds of pages I scrolled past. I created this website in 2017 to give other people hope that neuralgia isn’t a death sentence as the media would like to lead us to believe and because no one has the time or energy to trawl through medical journals either. This website is written by a real person actually living with TN.
I have a daughter called Blake, born in January 2021, and two rescue cats, Evie and Cooper, who I adopted in August 2015 when they were just a few weeks old. When I’m not blogging, I’m a Patient Support Officer at a hospital. I love going out for a cocktail and movie nights at home with my cats.
If you want to support my blog, you can make a £3 donation by clicking here. I make no money from my website, this will just make a small contribution to the cost of my domain name. Thank you for your support.
If you would like to make a donation to the TNA UK, the charity I am a trustee for, please click here.
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