Writer. Mother. Living with trigeminal neuralgia, polycystic ovaries and a rare eye disease.
One day, I will wake up again and the pain will hit me literally square in the face and I am right back to where I started.
Read more Why I Couldn’t Enjoy Remission From Trigeminal Neuralgia
If you are in a trigeminal neuralgia flare up, or attack, that is not managed by your medication at home and you feel like you cannot cope, you might find yourself considering attending A&E.
Read more The Trigeminal Neuralgia A&E Guide UK: What To Do In An Emergency
It's challenging enough to bring a newborn baby home from the hospital, especially when it's your first child. Throw into the mix that my little girl was born prematurely, that we were supposed to move house the week she was born and, finally, that I live with trigeminal neuralgia - and what you get is the toughest few months of my life!
Sometimes on a high pain week, I don't want to do a lot of chewing, so it's very tempting to stick to soups and yoghurt, but that isn't very exciting.
So my advice for anyone who is pregnant with trigeminal neuralgia?
Since 2020, I have run the North West Support Group for the TNA UK.
Read more 4 Things I Have Learned From Running Online Support Groups For Chronic Pain
The Trigeminal Neuralgia Association is a UK registered charity that provides information and support for people living with trigeminal neuralgia and also for carers and medical professionals. We collate and share research material about the treatment and management of TN and financially support research projects.
Being without a clear cause for pain or being without a diagnosis, does not mean that you are not in pain. It does not mean that you do not require medication to live with the pain.
Read more Why I Don’t Agree With the New NICE Guidelines For Chronic Pain
