I would have been happy to lie in bed forever.
I often feel that I have to justify my medical needs more than some other people, because mine isn't recognised anywhere by anyone! I always find myself thinking that no one has even heard of it, unless they personally know someone with it.
I recently posted a picture on my instagram of a pile of Salivix boxes on my bed. Salivix are some sweets that help stimulate saliva and I think they're actually recommended for cancer patients. No one had heard of them, but plenty of people were struggling along with the dry mouth side effect of medication.
Then my entire face went numb.
Unfortunately this isn't a travel blog post, this is the story of my suicide disease. I'm going to start at the second to last day of our holiday, when I realised that my teeth were starting to hurt a bit.
I have a chronic pain condition called Trigeminal Neurgalia. Recently, I shared on Facebook that I've just had my three year neuralgiaversary and asked how long everyone else had been living with TN for. People commented who hadn't yet been diagnosed and people commented who had been living with TN for 20+ years. What struck me most is that, as far as I could see, everyone could remember exactly when they first were struck down with neuralgia.
I have recently stopped Amitriptyline and reduced my Pregabalin down to 25mg twice daily, which soon I'll be stopping completely. Whenever I reduce a dose in medication, the side effects hit me hard and I feel very unwell for around five days every day, before I start to see any improvements. I'm getting pretty good at withdrawing from medication now, so I have a little system for whenever this is about to happen. This is how I do my drug withdrawal week!