My pain is worse when I get home from work.
It probably looks like I’m suddenly dramatic about my pain levels when I walk through the door after work or when I have a weekend to myself. When I wake up in a morning, I feel like I’m about to collapse sometimes, but when I log onto my work computer, I can (for the most part) function like a hard working adult. When I get home from work, I’m in too much pain to move.
Quite simply, my pain is worse when I have time to think about it.
I’m a very go, go, go type of person. I like to just crack on with whatever I’m doing and, suddenly, when I stop, my pain hits me like a ton of bricks. I’m conscious all the time that my face is sore, but when I have time to focus on it, that is when I find it most unbearable.
Obviously, I have pain flare ups where I can’t cope, whether I’m in work or at home, but as a general rule, for every day pain, I can do my job, do my shopping, do whatever I need to do out of the house before I completely give up in agony.
If anyone other than my partner could see me walking through the door after work and just announce that I’m in too much pain to move, they would just think I was faking my neuralgia, I swear. I’m very blessed that my partner and my home are my safe place, where I can finally collapse into a ball, complain about how unwell I feel and how I want to give up, without judgement, with complete understanding.
Where is your safe place? ♡
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