Category: The Vision Diaries
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I am often asked what I can actually see, because I have a rare eye disease.
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During my journey to my diagnosis of acute zonal occult outer retinopathy (AZOOR), I was called in for a fundus fluorescein angiography (which is easier if we just call it an FFA!) and an indocyanine green angiography (ICG) and it…
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When I was diagnosed with AZOOR, I was still pretending that I could see. I don’t like being told I can’t do something. I highly doubt you will ever meet anyone more stubborn than me.
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Both my physical health and mental health took a turn for the worse over the last few months – I’m having more issues than I know where to begin with and I haven’t been able to write for a while,…
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It is absolutely impossible to focus your eyes for 30 seconds and to not blink. I don’t know anyone who can hold their eyes open and focus on some images for half a minute at a time!
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I have to say, I’m pretty sick of being in the eye unit at the hospital. My second experience was better than my first, but after my third.. and fourth, I feel pretty sick to my stomach of the sight…
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I’ve been miserable before because of my health, but this was something else – l osing your sight is pretty scary! I’ve learned to cope with pain, but I’m not used to feeling so vulnerable and partially sighted.
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You were probably expecting me to say that everything went black. It didn’t. I got vivid rainbow hundred-and-thousands type floaters in my vision. Bright tiny little worms of colour, everywhere I looked, even if I shut my eyes.
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As, most of the time, I’m noticing it on my left side, I do tend to shrug it off with a quick ‘oh, it’s on my bad side, it’s on my TN’s side, I’ll be fine’, because everything that happens…
The Pain Corner 