I have a chronic pain condition called Trigeminal Neurgalia. Recently, I shared on Facebook that I've just had my three year neuralgiaversary and asked how long everyone else had been living with TN for. People commented who hadn't yet been diagnosed and people commented who had been living with TN for 20+ years. What struck me most is that, as far as I could see, everyone could remember exactly when they first were struck down with neuralgia.
I have recently stopped Amitriptyline and reduced my Pregabalin down to 25mg twice daily, which soon I'll be stopping completely. Whenever I reduce a dose in medication, the side effects hit me hard and I feel very unwell for around five days every day, before I start to see any improvements. I'm getting pretty good at withdrawing from medication now, so I have a little system for whenever this is about to happen. This is how I do my drug withdrawal week!
I see why you're supposed to brush your teeth morning and night. I love the fresh feeling in the morning and it definitely is good to give your teeth a good clean at the end of the day, but it's okay to do things a little differently.
As you may know, I'm engaged to be married next winter! With a house to do up and bills to pay, we need to be more careful with our finances than we have been and we've been making some changes to save up for our wedding.
I have to admit, before I got ill, I didn't really pay attention to if chronic illness myths were true or not - I just didn't really think about them at all. I didn't take them as gospel, but I didn't question their accuracy.
Coming off medication is so difficult and weaning myself off this time feels like hell on earth, but I'm looking forward to being side effect free!
I've been learning ways to let go, to take my mind off things, to be able to move forward and deal with any problems in a healthier way.