Trigeminal Neuralgia

Trigeminal Neuralgia and My Period

I started my period on Saturday and I’m convinced that it set my facial pain off. This probably wasn’t the post you were expecting from my blog today and it wasn’t one I was expecting to write either. In fact, linking my menstrual cycle to my Trigeminal Neuralgia isn’t something I’ve ever considered before.. until this weekend.

I have been at a relatively low pain level for the last couple of weeks and the day my period started, I was in absolute agony.

I don’t usually get a headache with my period. In fact, I’ve actually enjoyed having a ‘normal person’ headache for the last couple of times I’ve experienced one with my cycle. I always get really bad stomach cramps, which can make me double over in pain. I get back ache occasionally, but I never get sore boobs. I’m aware of all the usual pain symptoms that are associated with getting your period and I always know what pain to expect.

This weekend, when my period started, my neuralgia decided to start playing up too. It was timed almost perfectly and, it’s only as my period has eased up and passed the heaviest days, that my facial pain has calmed a little too. Last month, I experienced the same thing, which I thought was just a coincidence at the time, but now I’m sure it’s something more. I started to look into this and I’ve come across a couple of things and had a few thoughts..

No one is really talking about this on the internet. I came across about two articles and a handful of forum posts, where other people are wondering if their period has anything to do with a neuralgia flare up.

The articles conclude that they actually don’t really know if periods can set neuralgia off. Which leaves me thinking I’ll have to conduct a study about this myself! I’ve seen a lot of ‘hormones might affect it’, but really, no one has a clue!

No one knows anything much about Trigeminal Neuralgia in general. It’s all guess work, even by the professionals!

I feel like we need to get this conversation started. I am convinced that my period has had something to do with my pain this weekend.

Please tell me about your experience with neuralgia and your period, even if it doesn’t cause a flare up for you! Please let me know your thoughts about this topic! ♡

5 thoughts on “Trigeminal Neuralgia and My Period

  1. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).

    Like

  2. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area (Nova Scotia, Canada) proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).
    Thanks for documenting your observations, thoughts, and feelings regarding this horrible affliction. I’m so sorry that someone as young as you is dealing with this monster. Stay strong.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s