Trigeminal Neuralgia

Trigeminal Neuralgia and My Period

I started my period on Saturday and I’m convinced that it set my facial pain off. This probably wasn’t the post you were expecting from my blog today and it wasn’t one I was expecting to write either. In fact, linking my menstrual cycle to my Trigeminal Neuralgia isn’t something I’ve ever considered before.. until this weekend.

I have been at a relatively low pain level for the last couple of weeks and the day my period started, I was in absolute agony.

I don’t usually get a headache with my period. In fact, I’ve actually enjoyed having a ‘normal person’ headache for the last couple of times I’ve experienced one with my cycle. I always get really bad stomach cramps, which can make me double over in pain. I get back ache occasionally, but I never get sore boobs. I’m aware of all the usual pain symptoms that are associated with getting your period and I always know what pain to expect.

This weekend, when my period started, my neuralgia decided to start playing up too. It was timed almost perfectly and, it’s only as my period has eased up and passed the heaviest days, that my facial pain has calmed a little too. Last month, I experienced the same thing, which I thought was just a coincidence at the time, but now I’m sure it’s something more. I started to look into this and I’ve come across a couple of things and had a few thoughts..

No one is really talking about this on the internet. I came across about two articles and a handful of forum posts, where other people are wondering if their period has anything to do with a neuralgia flare up.

The articles conclude that they actually don’t really know if periods can set neuralgia off. Which leaves me thinking I’ll have to conduct a study about this myself! I’ve seen a lot of ‘hormones might affect it’, but really, no one has a clue!

No one knows anything much about Trigeminal Neuralgia in general. It’s all guess work, even by the professionals!

I feel like we need to get this conversation started. I am convinced that my period has had something to do with my pain this weekend.

Please tell me about your experience with neuralgia and your period, even if it doesn’t cause a flare up for you! Please let me know your thoughts about this topic! ♡

12 thoughts on “Trigeminal Neuralgia and My Period

  1. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).

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  2. My wife has been battling TN for more than a decade, and we have observed a DIRECT correlation between her pain level and:
    1. The approach of her menstrual cycle – Her pain level would noticeably begin increasing about 7 days prior to starting her period. Some months it would end up being quite severe;
    2. Atmospheric pressure changes – At least two days prior to an approaching weather system, especially a low pressure system, my wife can predict its arrival. Her pain level begins to increase and this increase is DIRECTLY proportional to the severity of the low pressure system. A recent hurricane in our area (Nova Scotia, Canada) proved to be exceptionally painful for her;
    3. Fluid retention – Any amount of fluid retention causes an increase in the level of her pain. This is so prevalent that she has reduced the amount of sodium and gluten in her diet (with positive results).
    Thanks for documenting your observations, thoughts, and feelings regarding this horrible affliction. I’m so sorry that someone as young as you is dealing with this monster. Stay strong.

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  3. I haven’t noticed a connection between my period and the flare ups but maybe because every time it has flared up my attacks were horrible almost the whole time Period or not. This time though the TN has been way better because of certain health choices I’m making and it’s amazing! It’s almost gone and I’m not on any medications. I do believe that it can be cured despite all of the negative info online about it being incurable. And you’re absolutely right the medical world knows hardly anything about it. It truly breaks my heart.

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  4. I just noticed that since I’ve been off of the Tegretol, I’ve gotten my period twice and both times I had a flare up on day 1. I’ve started writing everything down to do a little detective work myself.

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  5. Yesterday I posted your link to a support group in which I belong…Since we are all different, I proposed the question as, “Any other ladies notice that your TN spikes during the time which is the toughest part of your cycle?” Over twenty ladies so far say they suffer as well. Thanks for posting.

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  6. I have Endometriosis as well as TN. I never thought about them going hand in hand but I think you’re right cause my face definitely gets worse right before and during my period. I was just saying about how this past Sunday I was on the couch all day with a heating pad on my stomach, back and face. It was torture. Thanks for writing this article. I’m definitely more intrigued now.

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